Open science & access to research data

The FACE, BIOFACE and PSY-COH databases gather anonymized data and samples collected during evaluations within the FondaMental Expert Centers, from patients who have given their consent.
Open science & access to research data

→ Ce contenu est disponible en français ←

The FACE database

This database, made up of clinical data, is divided into 4 specific sectors for each of the following pathologies:

  • Autism spectrum disorders without intellectual disability.
  • Bipolar disorders.
  • Resistant depression.
  • Schizophrenia.

This bio-collection is made up of biological samples as well as biological data resulting from their analyses.

Summaries of available FACE data

To find out about the nature of the available data, please consult the summaries:

Access FACE data

To initiate your data access request, please:

  • Consult, complete and sign the access charter. This essential document provides you with information on the databases and bio-collections, details the access procedure and describes the publication rules.
  • Complete and sign the initial data access request form.
  • Send these two documents, completed and signed, to face@fondation-fondamental.org
  • Following this submission, you will receive a file to be returned to us, including the following elements: the data access request form (to be completed and signed), the letter of commitment (to be completed and signed), the database thesaurus(es) (the desired variables must be checked) and, in the case of an ancillary project, the specific file (to be completed and signed).

The BIO-FACE database

This bio-collection consists of biological samples and the biological data resulting from their analyses, from patients with autism spectrum disorders without intellectual disability, resistant depression, schizophrenia, or bipolar disorder.

The PSY-COH database

PSY-COHorte (psychiatry cohorts) is a program led by the FondaMental Foundation, which draws on the national network of FondaMental Expert Centers and a network of research laboratories (Inserm, CEA, CNRS, Institut Pasteur, etc.).

Cohorts are one of the benchmark tools for public health research and support ambitious research programs in the life sciences and the humanities and social sciences.

Ultimately, these large-scale studies will help optimize public health policies and medical practices, and position France at the highest international level. They also make it possible to tailor care as closely as possible to patients› needs, within the framework of personalized medicine.

Protected databases 

Data access procedure

To learn about the nature of the available data, please consult the summaries provided: 

  • Autism spectrum disorders without intellectual disability
  • Bipolar disorders
  • Resistant depression
  • Schizophrenia  
  • Bio-collections. 

These summarize, in a non-exhaustive manner, all the data classified by major themes.

To initiate your data access request

Consult, complete, and sign the access charter. This essential document provides you with information on the databases and bio-collections, details the access procedure, and describes the publication rules. Complete and sign the initial data access request form.

Send these two documents, completed and signed, to face@fondation-fondamental.org 

Following this submission, you will receive a file to return to us, including the following: 

  • the data access request form (to be completed and signed)
  • the letter of commitment (to be completed and signed)
  • the database thesaurus(es) (the desired variables must be checked)
  • and, in the case of an ancillary project, the specific file (to be completed and signed).

Faites un don

Donnez aux chercheurs les moyens d’agir pour la recherche en psychiatrie, faites un don à la Fondation FondaMental

Je donne